Rare Disease Day aims to raise awareness about rare diseases and their impact on patients’ lives. This initiative takes place every year on the last day of February and is organized by Rare Diseases Europe (EURORDIS) – an alliance of 917 rare disease patient associations.
2024:
Less Rare: demystifying rare diseases is the event organized by CNC-UC to mark World Rare Disease Day, on February 29, 2024. The session, held at the UC Exploratório - Centro Ciência Viva da Universidade de Coimbra, between 6.30pm and 8pm, includes a round table bringing together researchers and professionals from different areas, and ends with the performance 'The brain on the road to perfection', by the Rita Grade Dance School. This event makes part of the project Less Rare, led by the CNC-UC researcher Catarina Miranda.
Admission is free and the event is in Portuguese.
18h30-19h30 - Round table
Moderator:
Catarina Ribeiro, UC
Participants:
Luís Pereira de Almeida, CNC-UC, geneT, CIBB, FFUC
Joaquim Brites, Portuguese Neuromuscular Association
José Vilhena, DOCE Association
Célia Salema Costa, Portuguese Association of Hereditary Ataxias (APAHE)
19h30-20h00 - Dance performance
Embracing Rare Diseases, by the Rita Grade Dance School
